یه بچه‌ی طفل معصوم درگیر یه بیماری به‌شدت نادر شده و حالا هاگینگ‌فیس و سیج‌بایو با همکاری هم، داده‌های ژنتیکی و پرونده بالینی این بچه رو عمومی کردن تا متخصص‌ها و خوره داده‌ها بیان پای کار

There is a child with a rare disease who is currently suffering and struggling to manage his symptoms. Rare as this is, you can directly help him. Today we are launching the "Rare Disease, Real Kid" Hackathon, and there are $50,000 in prizes from @AnthropicAI and @awscloud. We (@huggingface & @Sagebio) are helping this child open his genome and clinical data to the community, so that we can find what's caused his disease and what currently-approved drugs could help him. I doubt I need to motivate this much further or explain how rare it is for a family to share their child's genome and clinical data, but if you're not sure, consider this: Until very recently, it wasn't feasible for patients like this to get treatment because their disease was so rare that the economics could never justify the investment. Now, as we've seen, people with rare diseases are starting to be able to find the answers themselves (with the help of AI tools, cheaper sequencing, etc). This kid is not able to do that for himself and neither are his parents, so we're asking you for help. Both for this kid and to prove that it's possible for everyone else suffering from a rare disease. More details in 🧵. https://sagebio-rare-disease-real-kid-mva-hackathon-2026.hf.space/